Associate Director, Neuromuscular, US Patient Advocacy
Core
Collaborate with Neuromuscular patient communities to understand unmet needs, mobilize patients for optimal care, and reduce access barriers to inform business strategy.
Role type
Senior Director-level Patient Advocacy Lead
Builds
Strategic patient advocacy programs and AI-enabled educational resources
Domain
Healthcare / Pharmaceutical / Neuromuscular diseases
Deliverable
product features
Required skills
Strategic relationship building, Integrated plan execution, Budget and agency management, Crisis management, Commercial launch experience, Policy and regulatory navigation
Preferred skills
US policy landscape knowledge, Rare disease area experience, AI program development
Technologies
AI-enabled educational platforms
Responsibilities
Build long-term relationships with patient organizations, Execute integrated patient advocacy strategies, Ensure patient insights are actioned across corporate affairs, Develop AI-enabled educational programs, Monitor performance and compliance, Manage agency partners and budget
Seniority
Senior, hands-on IC with management responsibilities