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Associate Director, Regional Patient Access & Experience

US🌐 Remote💼 Full-time💰 $159,000–$159,000🗓 2026-09-22 → 2026-09-27

Core

Regional point of contact for an ultra-rare disease patient support program, guiding patients, caregivers, and providers through treatment initiation, adherence, insurance navigation, and access challenges.

Role type

Senior IC patient access & experience director

Builds

Coordinated patient support experience for ultra-rare disease therapies

Domain

Healthcare / Ultra-rare disease / Patient Access

Deliverable

client delivery

Required skills

Patient and provider engagement, Insurance navigation, Financial assistance program coordination, Program operations management, Cross-functional collaboration, Process improvement, Compliance alignment, Educational program development, Stakeholder training, Subject matter expertise in rare disease therapies

Preferred skills

Rare disease and pediatrics experience, Complex therapies knowledge, Field-based patient engagement, Spanish proficiency, Travel readiness

Technologies

Patient engagement platforms, Case management systems

Responsibilities

Engage patients, caregivers, and healthcare providers to create a seamless support experience; Educate stakeholders on disease state, product materials, and treatment access; Partner with payers and specialty pharmacies to navigate coverage and reimbursement barriers; Connect patients with financial assistance and support resources; Monitor program operations and maintain team alignment; Represent the program at advocacy events and facilitate educational initiatives; Identify and implement continuous improvement opportunities based on field feedback.

Seniority

Senior, hands-on IC

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