SMA Family Access Manager - Central Texas
Core
Patient-facing expert and liaison for rare disease therapies, managing access, reimbursement, and non-clinical barriers for patients and caregivers.
Role type
Senior Management, Patient Access & Market Access
Builds
Patient access pathways and therapy initiation for rare disease patients
Domain
Biotechnology / Rare Diseases / Market Access
Deliverable
client delivery
Required skills
Market access, field reimbursement, physician-administered drugs (PADs), payer policy navigation, cross-functional leadership, case management, stakeholder management, advocacy
Preferred skills
Rare disease experience, case management, bilingual Spanish
Technologies
None stated
Responsibilities
Support patients/families to gain access to therapy; play the role of patient advocate in cross-functional meetings; identify and resolve patient access barriers; work with Market Access & Reimbursement to ensure appropriate reimbursement; provide emotional support and education to patients/caregivers; complete comprehensive assessments of individual patient needs; develop solutions for families regarding insurance and resources.
Seniority
Management, hands-on leadership