SMA Family Access Manager - Dallas, TX
Core
Patient-facing expert and liaison for rare disease therapies, managing non-clinical barriers to treatment initiation and ongoing therapy for patients, families, and caregivers.
Role type
Senior IC patient access manager (rare disease)
Builds
Patient access pathways and case plans for rare disease therapies
Domain
Biotechnology / Rare Disease / Patient Access
Deliverable
client delivery
Required skills
Market access knowledge, field reimbursement expertise, physician-administered drug (PAD) experience, cross-functional leadership, case management, payer policy navigation, emotional support, bilingual Spanish (preferred)
Preferred skills
Rare disease experience, case management background, master's degree
Technologies
None stated
Responsibilities
Support patients/families to gain access to therapy via disease/product education and site of care coordination; Play patient advocate in cross-functional meetings to build accurate case plans; Identify and resolve patient access barriers including insurance coverage, reimbursement, and financial limitations; Engage with payers, specialty pharmacies, and distributors to ensure access; Provide strong emotional support to individuals with rare diseases and caregivers; Complete comprehensive assessments of individual patient needs including payer policies and local healthcare systems; Develop solutions for families including alternative insurance options; Educate patients and caregivers on product and Biogen patient services; Build rare disease networks through local advocacy groups and national conferences.
Seniority
Senior, hands-on IC