CareerPlan

Head of Patient Engagement, Rare Disease

Research Triangle Park, NC, USFull-time$206k–$283k2026-10-08 → 2026-11-12
Based in United States

Core

Leading Biogen's patient engagement strategy for the Rare Disease portfolio, overseeing patient support programs, specialty pharmacy operations, and hub services to ensure therapy access and adherence.

Role type

Senior leadership (Head of) patient engagement and operations

Builds

Integrated patient engagement solutions, specialty pharmacy partnerships, and patient support programs

Domain

Biotechnology / Rare Disease Therapeutics

Required skills

Strategic leadership, cross-functional influence, specialty pharmacy operations, vendor management, program performance metrics, budget management, operational excellence

Preferred skills

Digital transformation, analytics partnership, P&L management, specialty distribution networks

Technologies

Patient services technology platforms, inventory management systems

Responsibilities

Lead the Rare Disease Patient Engagement function; Develop strategies to improve patient access and adherence; Manage external vendors and service partners; Partner with Commercial, Market Access, and Medical teams; Establish and monitor KPIs for program effectiveness; Drive continuous improvement through data and insights.

Seniority

Executive / Senior Leadership