AD, Patient & Community Liaison - Central US Region
Core
Patient-facing role engaging with Duchenne Muscular Dystrophy (DMD) and Spinal Muscular Atrophy (SMA) communities to deliver education on disease progression, treatment benefits, and product usage.
Role type
Patient & Community Liaison (PCL)
Builds
Patient education programs and advocacy partnerships
Domain
Healthcare / Neuromuscular Therapies / Gene Therapy
Deliverable
client delivery
Required skills
Patient education, regulatory compliance, bilingual communication (Spanish/English), event hosting, virtual meeting facilitation, stakeholder relationship building, budget management
Preferred skills
Neuroscience/neuromuscular therapies experience, gene therapy knowledge, rare disease expertise
Technologies
Salesforce, Concur, FUSE, video conferencing tools
Responsibilities
Deliver empathetic education on disease and products to patients/caregivers; build relationships with local advocacy chapter leads; host live and virtual events; respond to virtual inquiries; provide insights to cross-functional teams on patient knowledge gaps; adhere to regulatory standards and document interactions.
Seniority
Mid-Senior level (5+ years experience)