Projektmanager:in - Schweizer Register für seltene Krankheiten
Core
Operate and develop the Swiss Register for Rare Diseases to build a national data foundation for diagnostics, disease progression, and therapies to improve patient care and advance research.
Role type
Senior Project Manager (Rare Diseases Registry)
Builds
National rare disease registry database and data infrastructure
Domain
Public health, rare diseases, clinical epidemiology
Required skills
Project management in healthcare/clinical research, regulatory knowledge (Human Research Act, data protection), database development, grant writing, stakeholder negotiation, public relations
Preferred skills
Experience with ethics committee applications, knowledge of French language
Technologies
Databases, data collection tools, web platforms
Responsibilities
Manage the SRSK operationally, coordinate project logistics with hospitals, develop database with IT specialists, formulate sustainable financing strategies, exchange with federal offices and patient organizations, conduct public relations
Seniority
Senior, hands-on IC