Koordinator für das Kinderlungenregister (m/w/d)
Core
Coordinate and manage the European Child Lung Registry for rare interstitial lung diseases, supporting over 1000 patients across 20 countries through data management, genetic analysis support, and clinical follow-up.
Role type
Clinical research coordinator (registry management)
Builds
The Child Lung EU Registry database and cohort data for clinical studies
Domain
Pediatric pulmonology and rare disease research
Required skills
Data management, database maintenance, sample handling, clinical documentation, cohort formation, laboratory coordination
Preferred skills
Biomedical background, genetic analysis knowledge, functional study support
Technologies
Registry databases, laboratory information systems
Responsibilities
Maintain and archive registry database, process patient biobank samples, coordinate with referring physicians and labs, support clinical study cohorts
Seniority
Mid-level, independent contributor